The Administration on Intellectual and Developmental Disabilities (AIDD) is the U.S. Government organization responsible for implementation of the Developmental Disabilities Assistance and Bill of Rights Act of 2000, known as the DD Act. On April 16, 2012, the U.S. Department of Health and Human Services combined AIDD, the Administration on Aging, and the Office on Disability into a new agency called the Administration for Community Living. In addition, the Administration on Developmental Disabilities changed its name to the Administration on Intellectual and Developmental Disabilities.
Self-Advocates Becoming Empowered (SABE) is the United States’ national self-advocacy organization. SABE’s mission is to ensure that people with disabilities are treated as equals and that they are given the same decisions, choices, rights, responsibilities, and chances to speak up to empower themselves; opportunities to make new friends; and to learn from their mistakes.
The National Youth Leadership Network (NYLN) is a non-profit organization run by young people with disabilities. The mission of NYLN is to promote youth leadership and education. NYLN teaches youth how to advocate. Their goal is to make sure that youth with disabilities have the chance to set and reach their own goals. NYLN is made up of young leaders with disabilities from across the U.S. and its territories. The Governing Board leads the Network. And the Governing Board is also made up of young people.
The Autistic Self Advocacy Network (ASAN) seeks to advance the principles of the disability rights movement with regard to autism. Drawing on the principles of the cross-disability community, ASAN seeks to organize the community of Autistic adults and youth to have our voices heard in the national conversation about us. ASAN believes that the goal of autism advocacy should be a world in which Autistic people enjoy the same access, rights, and opportunities as all other citizens. We hope to empower Autistic people across the world to take control of our own lives and the future of our common community. Nothing About Us, Without Us!
The Association of University Centers on Disabilities (AUCD) is a network of interdisciplinary centers advancing policy and practice for and with individuals with developmental and other disabilities, their families, and communities. Currently, AUCD represents 67 University Centers for Excellence in Developmental Disabilities (UCEDD) across the country with at least one center found in every state and territory in the U.S.
The National Association of Councils on Developmental Disabilities (NACDD) serves as the national voice of the 55 State and Territorial Councils on Developmental Disabilities. NACDD supports Councils in implementing the Developmental Disabilities Assistance and Bill of Rights Act (DD Act) and promoting the interests and rights of people with developmental disabilities and their families. The DD Act charges Councils to identify the most pressing needs of people with developmental disabilities in their state or territory and to engage in advocacy, systems change and capacity building activities to help States meet the identified needs.
The National Disability Rights Network (NDRN), is the nonprofit membership organization for the Protection and Advocacy (P&A) system and Client Assistance Program (CAP). The P&A/CAP network was established by the United States Congress to protect the rights of people with disabilities and their families through legal support, advocacy, referral, and education. The P&A/CAP network is the largest provider of legally based advocacy services to people with disabilities in the country. NDRN’s mission is to promote the integrity and capacity of the P&A and CAP national network and to advocate for the enactment and vigorous enforcement of laws protecting civil and human rights of people with disabilities.
The National Association of State Directors of Developmental Disabilities Services (NASDDDS) mission is to assist member state agencies in building person-centered systems of services and supports for people with developmental disabilities and their families.
Human Services Research Institute (HSRI) has been involved in the field of developmental disabilities since the organization’s inception in 1976. Our work has tracked the important and historic changes that have taken place during that time including the movement of people with intellectual and developmental disabilities out of public institutions, the use of Medicaid waiver funds to leverage that transition, the creation of community supports, the growth of the family support movement, the expansion of quality assurance and improvement systems, the blossoming of the self-advocacy movement, and the press for self-determination.