Welcome to the Allies in Self-Advocacy Website!

In 2011-2012, The Administration on Intellectual and Developmental Disabilities (AIDD) funded self-advocacy summit and leadership gatherings of self-advocates and partners to gather information around self-advocacy activities and policies in each of the 56 U.S. states and territories. The goal was to learn what each state was doing around self-advocacy, help each state develop and present a state plan to strengthen their activities around this area, and develop national policy recommendations for AIDD and its partnering organizations. Overall, the purpose was to strengthen and enhance self-advocacy efforts in the states and nationally. Progress has continued beyond the summits, and all are welcome to join the ongoing efforts and conversations.

Click here to read a welcome message from AIDD Commissioner, Sharon Lewis.


Archived Webinar: Wisconsin’s Self-Advocacy and Public Policy Efforts

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Wisconsin’s DD Network  works together to support self-advocates to strengthen our Statewide Self-Advocacy  efforts. Hear from  Wisconsin’s Disability Partners organizations and  People First Wisconsin on ways we are working together to increase leadership capacity and create change in Wisconsin.


  • Tangible ways self-advocates can influence policy
  • Strengthening Self-Advocacy in Wisconsin
  • Networking is Key: How I’m using what I learned at the Self-Advocacy Summit.
  • The role of the self-advocate in a Wisconsin

PowerPoint Presentation


  • Lisa Pugh, Public Policy Coordinator, Wisconsin Disability Policy Partnership; Disability Rights Wisconsin
  • Jason Endres/ Cindy Bentley, People First Wisconsin
  • Fil Clissa, The Wisconsin Board for People with Developmental Disabilities
  • Jeremiah Swisher, Self-Advocate
  • Aliza Claire Bible/ Julie Schears, Waisman Center, WI UCEDD/LEND

Toolkit for Potential Funders who Support Self-Advocacy Organizations

This tool kit is designed to help funders who are interested in funding self-advocates and self-advocacy organizations to have a better understanding of how to work best with people with disabilities, and make sure their needs are met throughout the grant process. This toolkit is the result of needs that were identified by the Association of University Centers on Disabilities (AUCD) while providing technical assistance for a self-advocacy pilot grant project that was funded by the Administration on Intellectual and Developmental Disabilities (AIDD). View Funders Toolkit

Self-Advocacy Organizational Development Grantees Announced

The Association of University Centers on Disabilities (AUCD) is pleased to announce the successful Self-Advocacy Organizational Development Mini-Grantees, funded by the Administration on Intellectual and Developmental Disabilities (AIDD).

Competition Summary

AUCD received a total of 41 applications from self-advocacy groups representing a significant number of states and territories across the country. Applications were received from 24 self-advocacy groups interested in obtaining 501(c)3 status (Group A), and 17 self-advocacy groups interested in providing peer-to-peer technical assistance (Group B). Completed applications were scored by peer review panels that included 2 DD Network members (UCEDD, DD Council, or P&A staff), and at least 1 self-advocate. Applicants receiving the highest scores among each group (A and B) are awarded the mini-grants. Congratulations to the following Self-Advocacy Organizational Development Grantees!

Grant “A” Grantees: Awarded $5,000 each

  • Arkansas People First  -  North Little Rock, AR                             
  • Self-Advocates United as 1 -  Greenville, PA          
  • Voices of Virginia  -  Richmond, VA                       
  • Autistic Self-Advocacy Network – Portland Chapter  -  Portland, OR
  • New Mexico Allies for Advocacy  -  Albuquerque, NM

Grant “B” Grantees: Awarded $30,000 each

  • Self-Advocates Becoming Empowered  -  USA
  • Colorado Cross-Disability Coalition  - Denver, CO
  • Peer Action Disability Support - Iowa City, IA

Questions can be directed to Anna Costalas at acostalas@aucd.org or Liz Weintraub at lweintraub@aucd.org at the AUCD central office.

Click here to read more about the request for applications

This website was funded by the Administration on Intellectual and Developmental Disabilities through technical assistance contract #Contract #HHSP23320110016YC. The contents of this website do not necessarily reflect the views or policies of the Administration on Intellectual and Developmental Disabilities, Administration for Community Living, US Department of Health and Human Services, or the US Government.


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